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Maybe the title of my last post jinxed us. Because, honestly, the thought of me just not knowing when to shut up is about the best explanation I have for why this is happening.
Let’s do a quick recap, shall we?
- October 1, Thursday
John was admitted to Clear Lake Regional Heart and Vascular Hospital by his new GP after he had done an xray that showed a very clear case of plural effusion that even I could see was bad news on the film. His doctor remarked how hard to believe it was that John, standing there looking for all the world like his only problem was a nagging cough was the same guy on the xray. He said he would have thought he’d be in bed saying he couldn’t get out.
He then admitted him to the hospital and his blood sugar, upon admittance, was in the 500 range. I can’t remember exactly and it was before I was keeping my own record. (Yes, that’s right, I refuse to go the the nurses station and find out, so get over it.) His blood pressure was 134/98 and his heartbeat was 121. Quite fast.
- October 2, Friday
I only recorded the vitals 5 times this day and the lowest his blood pressure got was 95/64 and the highest was 120/96. They were pumping him full of blood pressure meds and lasix to get the swelling down. His legs, ankles, and belly were very swollen.
Highest blood sugar was 325 and he got 15 units of insulin for that one particular reading.
FYI, blood sugar levels should never be over 160.
He had several bouts with diarrhea, probably due to stress and nerves.
Cardiologist said that his heart was working at about 30%. He didn’t bother telling us until later that the norm is between 45 and 55% or somewhere around there. Doctors are such dumb-asses sometimes.
I stayed up a long time that night watching him sleep. He has, what I found out on the internet is, central sleep apnea. I made a video of him sleeping with my camera and considered posting it on youtube. Figured he’d shoot that down and haven’t brought it up to him yet.
- October 3, Saturday
Here it is Saturday and he, apparently, has no intention of taking me out to eat anywhere. Where did we go wrong as a couple?
His blood pressure stayed low all day and his heart rate right around 100. Blood sugar was right around 250 all day as well.
He had three bouts of extreme shortness of breath in the early AM.
Went for a cat scan around 3:00pm and the results weren’t that good. Still signs of fluid in and around his lungs BUT, a rhythm in his soul.
Then his cardio guy told us that he had had a heart attack and the reason this was evident was the presence of an enzyme in his blood called troponin. If I had a son I think I’d like to name him Troponin.
What was I saying? OH, Yeah! My husband had a heart attack. Slipped my mind for a moment. (read sarcasm here)
- October 4, Sunday
His blood pressure was, of course, low all day. His heart rate averaged about 100, and his blood sugar topped out at 396. He received 15 units of insulin more than once that day.
He received a shiny new IV port for the procedure that everyone seemed to think was going to happen tomorrow, except the doctor who saw the chest films and heard all the coughing he was doing.
See he can’t have the procedure until he can lie flat in bed for at least 6 hours without moving. This is to allow the entry wound in the groin heal so that if he moves and blows the clot, he won’t bleed out and die in minutes. It’s a good thing, as Martha would say.
HOWEVER, he is still coughing due to the fluid in and around his lungs. He has had enough lasix to dry up The Great Lakes. I am beginning to wonder what it will take.
- October 5, Monday
Oh. My. Gawd. This has been a day I will never forget. John wasn’t well enough to do the angigram, still. It is definitely planned for tomorrow.
You know, I have had this feeling in my gut that something wasn’t right since this whole thing started. It seems like years ago, but it was just last Thursday. It is now 5 days since he was admitted. I just keep repeatedly thinking about him going to the doctor on February 27 because he was concerned about losing a lot of weight very rapidly and told the doctor he was worried that he might have diabetes. Said doctor preformed some blood tests and asked him lots of questions. Tried to get him to do the colonoscopy, and John turned that down. But he seemed to be fairly thorough. I was a little bit on pins and needles wondering what the results were going to be. I very much expected him to be diabetic just because it would be a very nice reason for the weight loss compared to what all had been running through my mind. Cancer. Though I never said it.
The day came when the nurse from the doctor’s office called and told John his test results. That’s right, the nurse. Automatically, we know the results are negative for everything from liver disease to athletes foot. Because the nurse doesn’t deliver bad news, the doctor gets you in his office to do that. In person.
So she ended up telling him that everything was good to just get his cholesterol down some it was a tad high.
He specifically asked what the diabetes testing showed. She said negative. This just does not gel. John has had a test since he got here called an A1C that graded an 11. “They” said it should be no more than a 7 and this is pretty bad. But they assured me that he has had the diabetes for more than 3 months and they know this for sure because of the test. So since he supposedly didn’t have it in February and he couldn’t possibly developed it after July, I am supposed to believe he just magically developed it the five months in between and it got so bad so fast that he was admitted to the hospital with his blood sugar in the 500’s?
Clearly something is off.
So fast forward to today and picture me sitting around in this hospital room with a very sick husband for the last 5 days and know that I am going to get to the bottom of this. I called the doctor’s office this morning and asked them to make a copy of his file for me, and I would come by and pick it up later this afternoon. The lady did and I got it, tore it open in the car and started pouring over it. The first thing I noticed is his blood sugar was 272. IT WAS EVEN CIRCLED. Then again on another page it says glucose 2+ along with protein 2+ and ketones 1+. I don’t know what all of these are but the glucose amount was circled as well.
So at this point I am furious because they found out he had diabetes back in February and didn’t tell us. If they had NONE of this would have happened in all likelihood. Every doctor we have seen in this hospital has told us that the heart condition was brought about by the untreated diabetes. So if this doctor, that shall remain unnamed for the time being, had told us about it we would have begun treating it immediately and gotten it under control way back then.
Now let me tell you why I became a bit hysterical earlier. (Geeze, it’s 1:35am. Ok, it was yesterday.)
At the bottom of one of the pages it says, “Diagnosis: 1. Malignant neoplasm without specification of site; other (199.1), Primary Diagnosis, Onset 2. Abnormal loss of weight (783.21), Secondary diagnosis, Onset”
He has a cancer that, well, I will just link to it because it is pretty clear and succinct. And you may have noted with all the extra gibberish that I am anything but succinct tonight.
So. Here we are EIGHT MONTHS LATER. I found a nurse when I got here and asked her to verify my findings and she agreed. (OR, did she concur?) I asked if they had done a PSA test here and she said no, that was a test for cancer and they hadn’t done one. It was about 7:30pm so I am going to wait until after the angigram tomorrow and then ask his cardio dr. to do one and show him why. Then, if it’s really true and this isn’t just some really, really bad cosmic joke, I’ll find an oncologist.
Now, my question for you. It is almost 2:00am and my nerves are shot. I am so sorry this was so long and rambling. You regular guys know that I usually try to keep the posts to a manageable size. And definitely lighter in mood. If, in fact, you are still with me, please tell me what you think you’d do. I am not a violent person at all but, I really have a distinct desire to bodily attack that original Dr. Do I get an attorney? What to do? Please ask other people that you think might know if you can come up with any.
I am Just. So. Angry. and scared.